Photo of Marion

Despite all she’s been through, Marion remains positive following her blood clot diagnosis and is happy to share her story with others.

I discovered that I have three rare blood clotting disorders 15 years ago. Since that time, I’ve gone through a number of tests and all of the oral anticoagulants (“blood thinners”) have failed me.

I had a serious blood clot or deep vein thrombosis that led to multiple blood clots in my lungs (pulmonary embolism, PE). The PEs damaged my lungs and now only one of my lungs is working. I also have stage 3, borderline COPD (chronic obstructive pulmonary disease).

I am now taking low molecular weight heparin injections every 12 hours for the rest of my life, and see six different doctors monthly.

Despite the challenges that have followed since by blood clot diagnosis, I remain positive and am so glad to be here to tell my story. Awareness and education can help to save lives.

Learn more about blood clot risks and signs and symptoms here.
Read more about thrombophilia or genetic clotting here.
Watch a short video about genetic clotting conditions here.
Share your story for publication on the Rowan Foundation’s website and social media channels here.