Savannah shares her story about pregnancy and blood clotsI had my son via C-section in April 2023. During my pregnancy, the doctors said that the leg pain I was experiencing was just sciatica. After having my son, I was having severe headaches. The pain medicine I was given didn’t help. A week after my son was born I had three seizures. After being misdiagnosed by multiple hospitals – even staying a week in the neuro intensive care unit – they continued to disregard the obvious symptoms of blood clots.

After I was discharged, I went home and my condition grew worse. I couldn’t walk. I went to a third hospital, where they immediately started running tests. These tests showed that I had massive blood clots starting under my right breast going down to my ankle. I also had multiple clots in both lungs. The next day they proceeded with surgery to remove the clots.

I now know that I am affected by several genetic clotting conditions, including hereditary antithrombin III deficiency, protein S deficiency, and homozygous MTHFR gene mutation. The risks posed by these clotting disorders were compounded by my pregnancy and C-section, both of which are major risk factors for blood clots.

Everyone should grow in their knowledge and learn about their potential risk factors for blood clots, including a family history of clotting. We need to do better in women’s healthcare and recognize the clotting risks unique to women throughout their lifetime, including pregnancy, estrogen-based birth control, and the treatment of menopause symptoms later in life with estrogen therapy. Women’s healthcare…please do better.

Read more about the clotting risks connected to women’s health, including pregnancy.
Watch a short video about genetic clotting conditions here.
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